Advocacy Group Support
You don’t have to face cancer alone. A community of support stands with you.
The Patient Advocacy team at Verastem Oncology and the following patient advocacy groups are dedicated to supporting the patients and caregivers who are battling cancer every day. These resources are listed for informational purposes and are not meant to replace your healthcare provider’s medical advice. Verastem Oncology is not endorsing any particular group or service and is not responsible for the content of these sites or services.
Learning more about CLL/SLL, FL, and cancer
No single website will tell you everything you need to know about CLL/SLL or FL, and even the best websites are only a starting point for understanding how your cancer impacts you. But the following sites may be a good starting point to help you learn more and guide conversations with your doctor. Be sure to talk to your healthcare provider if you have any questions.
- CLL Society
- Lymphoma Research Foundation
- The Leukemia & Lymphoma Society
- Cancer Support Community
These resources are provided as a convenience, but they are not controlled by Verastem Oncology. Verastem Oncology is not responsible for the content or your use of these resources. The groups listed here are independent, nonprofit patient service organizations. Their listing on this website does not imply endorsement of any product or company. All logos and trademarks are the property of their respective owners.
Wondering how to start the conversation with your doctor?
Making the most of your doctor appointments is always important—especially if you’re considering COPIKTRA as a treatment option or just want to learn more about it. If you need help organizing your thoughts consider downloading the COPIKTRA Doctor Discussion Guide.Download Doctor Discussion Guide
What is the most important information about COPIKTRA?
COPIKTRA can cause serious side effects, including:
- Infections. Infections are common during COPIKTRA treatment and can be serious and can lead to death. Tell your healthcare provider right away if you have a fever, chills, or other signs of an infection during treatment with COPIKTRA.
- Diarrhea or inflammation of your intestine. Diarrhea or inflammation of your intestine (colitis) is common during COPIKTRA treatment and can be serious and can lead to death. Your healthcare provider may prescribe an antidiarrhea medicine for your diarrhea. Tell your healthcare provider right away if you have any new or worsening diarrhea, stool with mucus or blood, or if you have severe stomach-area (abdominal) pain. Your healthcare provider should prescribe medicine to help your diarrhea and check you at least weekly. If your diarrhea is severe or anti-diarrhea medicines did not work, you may need treatment with a steroid medicine.
- Skin reactions. Rashes are common with COPIKTRA treatment. COPIKTRA can cause rashes and other skin reactions that can be serious and can lead to death. Tell your healthcare provider right away if you get a new or worsening skin rash, or other skin reactions during treatment with COPIKTRA, including:
- painful sores or ulcers on your skin, lips, or in your mouth
- severe rash with blisters or peeling skin
- rash with itching
- rash with fever
- Inflammation of the lungs. COPIKTRA can cause inflammation of your lungs which can be serious and can lead to death. Tell your healthcare provider right away if you get new or worsening cough or difficulty breathing. Your healthcare provider may do tests to check your lungs if you have breathing problems during treatment with COPIKTRA. Your healthcare provider may treat you with a steroid medicine if you develop inflammation of the lungs that is not due to an infection.
If you have any of the above serious side effects during treatment with COPIKTRA, your healthcare provider may stop your treatment for a period of time, change your dose of COPIKTRA, or completely stop your treatment with COPIKTRA.
COPIKTRA may cause other serious side effects, including:
Elevated liver enzymes. COPIKTRA may cause abnormalities in liver blood tests. Your healthcare provider should do blood tests during your treatment with COPIKTRA to check for liver problems. Tell your healthcare provider right away if you get any symptoms of liver problems, including yellowing of your skin or the white part of your eyes (jaundice), pain in the abdominal region, bruising or bleeding more easily than normal.
Low white blood cell count (neutropenia). Neutropenia is common with COPIKTRA treatment and can sometimes be serious. Your healthcare provider should check your blood counts regularly during treatment with COPIKTRA. Tell your healthcare provider right away if you have a fever or any signs of infection during treatment with COPIKTRA.
Common side effects of COPIKTRA include:
- upper respiratory infection
- bone and muscle pain
- low red blood cell count
These are not all the possible side effects of COPIKTRA. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088 and to Verastem Oncology at 1-877-7RX-VSTM (1-877-779-8786).
Before taking COPIKTRA, tell your healthcare provider about all your medical conditions, including if you:
- have intestinal problems
- have lung or breathing problems
- have an infection
- are pregnant or plan to become pregnant. COPIKTRA can harm your unborn baby.
- Your healthcare provider should do a pregnancy test to see if you are pregnant before you start treatment with COPIKTRA.
- Females who are able to become pregnant should use effective birth control (contraception) during treatment with COPIKTRA and for at least 1 month after the last dose of COPIKTRA. Talk to your healthcare provider about birth control methods that may be right for you. Tell your healthcare provider right away if you become pregnant or think you are pregnant during treatment with COPIKTRA.
- Males with female partners who are able to become pregnant should use effective birth control (contraception) during treatment with COPIKTRA and for at least 1 month after the last dose of COPIKTRA.
- are breastfeeding or plan to breastfeed. It is not known if COPIKTRA passes into breast milk. Do not breastfeed during treatment and for at least 1 month after the last dose of COPIKTRA.
Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. COPIKTRA and certain other medicines may affect each other.